As the diagnostic criteria for autism spectrum disorders (ASD) have shifted from a rigid definition to a broad spectrum, the rate of diagnosis has increased more than 4x, from 1 in 150 children in 2000 to 1 in 31 children in 2022.1 While expanded awareness and coverage can improve access to beneficial interventions, there is also the potential for overuse.
Background
Documented rates of ASD have increased, with a prevalence rate that is 3x higher in boys than girls.2 As of 2022, CDC estimates that approximately 1 in 31 eight-year-old children (3.2%) have been diagnosed with ASD, though prevalence varied substantially across CDC assessment sites, ranging from 9.7 to 53.1 per 1,000 children.3
Additionally, CMS has reported a prevalence rate of 5% among Medicaid beneficiaries, compared to 2% for commercially insured and uninsured populations.4 The observed variation indicates that non-clinical factors, including service availability and inconsistent provider practice, likely contribute to observed ASD prevalence rates.
In 2014, CMS issued guidance regarding Medicaid coverage for autism-related therapies, stemming from comprehensive coverage directives in the Affordable Care Act.5 This guidance clarified that states are required to cover medically necessary behavioral health services for children with autism, with the Federal government providing matching funds for these covered services. By 2022, all state Medicaid programs had extended coverage to include Applied Behavior Analysis (ABA) therapy.
The ABA workforce consists of professionals with varying levels of credentialing from the Behavior Analyst Certification Board, ranging from registered behavior technicians (RBTs) that have a high school degree and complete a 40-hour training program, to board certified assistant behavior analysts (BCaBAs) with a bachelor's degree, to board certified behavior analysts (BCBAs), which requires a master's degree and supervised experience.6 While the Bureau of Labor Statistics does not track BCBAs and RBTs specifically, projected employment growth for two related occupational categories - psychiatric technicians and aides and substance abuse, behavioral disorder and mental health counselors - is 16% and 17%, respectively, from 2024 to 2034, compared to 3% overall employment growth during the same period.7,8
By its nature, fee-for-service reimbursement creates financial incentives without corresponding required outcomes reporting. Recent Federal audits in Indiana and Wisconsin found that nearly all Medicaid payments for ASD services were considered improper or potentially improper, totaling $56M and $18.5M, respectively.9,10 Common issues included inappropriately credentialed staff, treatment that was not preceded by diagnostic evaluation and billing for services not rendered. In Minnesota, an investigation into Medicaid providers allegedly paying kickbacks to parents of children receiving ABA therapy is ongoing.11 High-profile fraud cases like these highlight systemic vulnerabilities in authorization, delivery and monitoring of autism services.
Understanding trends in utilization is crucial, given that service capacity is finite and the supply of qualified providers and appointment availability is limited, making it essential that resources reach high-need patients and ensure overdiagnosis is avoided.
Analytic Approach
National all-payer claims data and Trilliant Health’s Provider Directory were used to examine ABA service utilization from 2019 to 2024, measuring both visit volume and provider supply across service types, payer groups and states. This analysis examined ABA services across four domains: assessment, individual treatment, group treatment and family/caregiver training. Assessment CPT codes include CPT 97151 (behavior identification assessment by physician or qualified healthcare professional), CPT 97152 (behavior identification supporting assessment by technician) and CPT 0362T (behavior identification supporting assessment for patients with destructive behavior in customized environments). Individual treatment CPT codes include CPT 97153 (adaptive behavior treatment by protocol administered by technician), CPT 97155 (adaptive behavior treatment with protocol modification by physician or qualified healthcare professional) and CPT 0373T (adaptive behavior treatment with protocol modification for patients with destructive behavior in customized environments). Group treatment CPT codes were defined as CPT 97154 (group adaptive behavior treatment by protocol administered by technician) and CPT 97158 (group adaptive behavior treatment with protocol modification by physician or qualified healthcare professional). Family and caregiver training CPT codes include CPT 97156 (family adaptive behavior treatment guidance) and CPT 97157 (multiple-family group adaptive behavior treatment guidance). CPT codes 97151-97158 were introduced effective January 1, 2019.
Utilization patterns were segmented by payer type – Medicaid, commercial insurance and all payer. The supply of behavioral analysts and technicians was measured based on the number of unique National Provider Identifiers (NPIs) billing ABA codes.
Findings
From 2019 to 2024, ABA therapy service volume increased by 266.9%. Individual therapy was the dominant service category throughout the period analyzed, increasing by 256.0% and representing 85.0% of total volume during the study period (Figure 1). Within that category, CPT 97153 was the most common service, accounting for over 60% of visits across the study period. Assessment services increased both in share (3.6% to 4.8%) and volume (397.9%). Family and caregiver adaptive therapy grew by 345.6% in visit volume, while share increased by 1.3 percentage points. Group therapy services were least common, with its 2.8% share remaining constant and visit volume growing by 273.2% over the period. |
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